By Dr. Nicole Harmon, Chief of Staff, CDISC
I think we can all agree patient data is a valuable resource. Just as medical professionals devote themselves to improving health, the care and proper attention to using patient data should be of utmost priority to patient foundations funding research. Each time your organization funds or advocates for a research study, have you thought about how the study data are organized from collection to analysis and whether it can be shared and understood by other researchers?
Speaking the same language across studies