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Standards and the Patient - Dr Kush comments on the new stream at the North American Interchange

The second session on Thursday 4 November of the CDISC Interchange was comprised of four speakers who brought a true patient perspective and patient-oriented value to the picture of developing standards.  This session was chaired by David Handelsman of SAS, CDISC Advisory Board Representative to the Board Strategy Committee. 

The State of the CDISC Union: Creating Value and Ensuring the Future for CDISC by Dr. Rebecca Kush

“…..here’s the thing:   if I give my song away to 20 people and they give it to 20 people, pretty soon they know me and my value as a creator is dramatically enhanced.”
“The best way to raise demand for your product is to give it away.”

Both of these quotes, which I used to open my presentation at this year’s North American Interchange, were from John Perry Barlow--- the first as the lyricist for The Grateful Dead in the ‘70s and the second for Wired Magazine in 1994.

Landen Bain - Healthcare Link Updates

Landen went to Phoenix AZ for the first IHE face-to-face meeting of 2010.  The four day meeting was particularly productive. CDISC participates in the Quality, Research, and Public Health (QRPH, rhymes with Smurf) domain. The integration profiles under development that directly influence CDISC’s Healthcare link initiative are Retrieve Protocol for Execution (RPE) and Redaction Services. QRPH schedules its face-to-face meetings with two other IHE domains (there are 14 in all): Information Technology Infrastructure (ITI) and Patient Care Coordination  (PCC)...

Landen Bain - Healthcare Link, More than Learning ...

Fifteen attendees and presenters spend Friday the 13th teaching, learning, and sharing concepts around CDISC’s healthcare link project.  This is the second time that CDISC has presented a training session on healthcare link, the first being at the Japan Interchange in July of this year ...